A comic strip of people in front of a wall

Books for children, youth and families

Children and youth around the world ask the same questions -

How do I talk to my friends and family about ALS/MND?

What will happen when my family member dies?

What actually is ALS/MND?

Parents also need support in asking how and when to talk to my children about ALS/MND?

The below books address the questions head -on, providing an opportunity for children, youth, families, and schools to explore ALS/MND and support all those affected.

Graphic novel - English

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Graphic novel for children and youth

The graphic novel has been translated in several languages through collaborations with - ALS Netherlands, ACELA Colombia, ALS Schweiz, and MNDA South Africa.

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Parent and Family guide

How do I talk to my children about ALS/MND?

This book uses clinical expertise and interviews with families to guide the conversation, provide examples of discussions, according to age and development and when and how to discuss death and dying. In English, Spanish and Dutch.

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Parent and Family guide - translated

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Book for tweens - how to talk to friends and family

This book uses interviews with real teens -  discussing how they deal with ALS/MND. It follows several teens, and the different ways they chose to talk about ALS/MND with their friends and family

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BOOK FOR TWEENS - HOW TO TALK TO FRIENDS AND FAMILY (Spanish)

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Schools and ALS/MND

Written for school staff, how to support students

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