Books for children, youth and families
Children and youth around the world want to know more about ALS/MND, including How do I talk to my friends and family, and what does death and dying mean to me? Parents need the same support, including how and when to talk about ALS. The below books address the questions head -on, providing an opportunity for children, youth, families, and schools to explore ALS/MND and support all those affected.
Graphic novel - English
Graphic novel for children and youth
The graphic novel has been translated in several languages through collaborations with - ALS Netherlands, ACELA Colombia, ALS Schweiz, and MNDA South Africa.
Parent and Family guide
How do I talk to my children about ALS/MND? This book uses clinical expertise and interviews with families to guide the conversation, provide examples of discussions, according to age and development and when and how to discuss death and dying. In English, Spanish and Dutch.
Parent and Family guide - translated
Book for tweens - how to talk to friends and family
Real youth discuss how they deal with ALS/MND
BOOK FOR TWEENS - HOW TO TALK TO FRIENDS AND FAMILY (Spanish)
Schools and ALS/MND
Written for school staff, how to support students