Books for children, youth and families
Children and youth around the world ask the same questions -
How do I talk to my friends and family about ALS/MND?
What will happen when my family member dies?
What is ALS/MND?
Parents also need support in asking how and when to talk to my children about ALS/MND?
The below books address the questions head -on, providing an opportunity for children, youth, families, and schools to explore ALS/MND and support all those affected.
Graphic novel - Using the words of children and youth, sharing their stories of ALS/MND.
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Open in new tab Graphic novel for children and youth
The graphic novel has been translated in several languages through collaborations with - ALS Turkey, ALS Vietnam, ALS Netherlands, ACELA Colombia, ALS Schweiz, and MNDA South Africa.
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Parent and Family guide
How do I talk to my children about ALS/MND?
This book uses clinical expertise and interviews with families to guide the conversation, provide examples of discussions, according to age and development and when and how to discuss death and dying. In English, Spanish and Dutch.
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Parent and Family guide - Spanish and Dutch
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Book for tweens - how to talk to friends and family
This book uses interviews with real teens -Â discussing how they deal with ALS/MND. It follows several teens, and the different ways they chose to talk about ALS/MND with their friends and family
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BOOK FOR TWEENS - HOW TO TALK TO FRIENDS AND FAMILY (Spanish)
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Schools and ALS/MND
Written for school staff, how to support students
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