Youth Caregiving Advocacy Resources Education

Supporting children and youth in families with ALS/MND
Creating new materials and and translating all for children and families with ALS/MND
Youth Caregiving Advocacy Resources Education
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Creating new materials and and translating all for children and families with ALS/MND
Having a film or book in your own language opens the door for understanding - across illnesses.The foundation works with organizations to develop films and materials with no language and translates written books accessible across cultures
Working with other non-profits to create and build out youth focused programming - creating a connected world across organizations, translating materials and connecting youth to resources in their area/country.
Caregiving is complicated and stressful, made more so by not having the right tools. We work with organizations to provide families with new or gently used devices and tools.
Your support and contributions will enable us to provide education and support for children living with families with neurological disorders
Building Awareness of ALS, for children: working with Big Grin Productions to create an animated short film.
Luka is a robot, diagnosed with ALS. The film shows his journey through and after diagnosis, including the impact on others.
No language necessary, It’s a silent film, making it accessible for an international audience.
Accessible to everyone, we are making the film freely available on various media channels to reach a broader, international audience.
In ALS, amyotrophic lateral sclerosis,
nerve cells break down, which reduces functionality in the muscles they supply. Medication and therapy can slow ALS and reduce discomfort, but there’s no cure.
The average incidence rate of ALS worldwide is about one in 50,000 people per year that equates to about 5,760 to 6,400 new diagnoses per year. Counting relatives, Luka could help millions of children worldwide.
At this moment ALS is 100% incurable. We are fighting for an ALS-free generation.
16 year old young caregiver
Engaging young caregivers - The ALS Association is a long time supporter of the YCare program: skills, education and support for young caregivers.
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