Sascha and Anjo had to explain ALS to their young kids when dad (age 35) was diagnosed with a form of ALS - in a way that was accessible, fun and thoughtful. So, they created LUKi!
LUKi is a robot full of life and lights! He has friends and love to play soccer, until one day he gets ALS. His friends help care for him and support him every step of the way.
LUKi and the Lights is a silent film - using no language, only sound, to tell the story of LUKi and ALS. That way, children and families around the world can easily watch it!
Using the latest in visual technology, the film serves as a platform for children and families to discuss ALS and share with others.
Created by Big Grin Productions, with support from the ALS Association, LUKi and the Lights will be made freely available across streaming platforms, and ALS/MND organizations around the world.
Watch the film with your family or ALS/MND organization
Follow along with the film, or color at your own pace!
Use these materials to guide the discussion of LUKi and his friends, what is ALS, and answer FAQ's.
Anjo and Sascha - Creators, LUKi and the Lights
In May 2017, Anjo’s health is top notch. He serves in the Army and exercises a lot. Despite his efforts somehow it feels like he loses strength. When during an exercise he can’t undo the clasp of his helmet, he begins to worry……after more examinations at the ALS center, I received my verdict. PSMA, a form of ALS, life expectancy 3 to 5 years…. I was 35 years old at that time.
Toby Chochran, CEO, Founder Big Grin productions
With over 15 years in the creative industry in animation, commercial, and gaming, Toby is now telling his own stories. He grew a startup company to 220+ employees. Managed and worked on productions over $500k. Secured a big pitch to work with Shaquille O’Neal, directed numerous games simultaneously to eventually become a Creative Director for a NBC Universal game pitch, which the company successfully landed.
Andrian Ochoa, Producer, writer
Adrian is an award winning Producer, prior to joining Big Grin, Adrian worked at Pixar Animation Studios, Playstudios and Penrose Studios. His credits included Toy Story 2, Monsters Inc, Finding Nemo, The Incredibles, Cars, Wall-E, Cars 2, Monsters University, Inside Out, The Good Dinosaur. He’s also worked on various shorts including Cars Toons, live action shorts and Day and Night.
Melinda S. Kavanaugh, PhD, LCSW
President GNYC, Producer, LUKi and the Lights
Professor of social work and clinical social worker for over 20 years experience with children and youth in families with neurological disorders, Dr. Kavanaugh served as the content expert and co-producer for the film
Janna Brower-Schouten, producer
Janna met Sascha as daycare worker for her son, and now their children are schoolmates. In daily life Janna works as a studiomanager for a small AV-company. Making sure people can do their work is what she does.